65 Roses Benefit Concert

Raising money for Cystic Fibrosis Awareness

I want to thank you for your support in our efforts in raising money for the Cystic Fibrosis Foundation, for CF research and care. The third annual “65 Roses” Benefit Concert that was held on November 16, 2013 raised $8,762! To date we have raised $17,340! This could not have been possible without your help and support.

 

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. It also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

 

Recently a new drug, Kalydeco, was released to CF patients. It is the first medication that targets the genetic cause of cystic fibrosis, not just its symptoms. Although it is effective only for a small number of patients, the drug is hailed as an important breakthrough. Not only will it give powerful help to a small percentage of patients, "it also heralds the beginning of a new era" of therapies for other cystic-fibrosis patients.

 

Cystic fibrosis affects someone near and dear to the hearts of everyone that performed at the “65 Roses” Benefit Concert. This strong individual, who was on the stage dancing, continues to grow and push the boundaries every day of her life. Since beginning treatment with Kalydeco, Emma has already seen improvement in her day to day living. It was an honor to be able to bring together a wonderfully talented group of individuals to support her and CF in the best way possible. As we joined together on one stage, we raised awareness and funds that will help not only Emma, but others that are also battling with CF every day of their lives.

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